Guest blogging – Living with a chronic illness

Posted: June 9, 2012 in Uncategorized
Tags: , , , ,

I did a guest blog for Cee today, giving a review of a  great book, “You Don’t LOOK Sick; Living Well with Invisible Chronic Illness”.   In it, Joy Selak describes her journey with chronic illness, writing her stories so that all of us can find a common link and benefit from her experiences.  She co-authors the book with her rheumatologist, Dr. Steven Overman, who contributes his own experiences and knowledge.  Together, they create a practical and human guide to living well despite your illness.

I’ll be blogging on her site from time to time, and we’ll be compiling all of our writings into a book, telling our story from the point of view of the person with the illness and from the point of view of the caregiver / companion.  Both sides need to have their stories told.  We want to be able to give people answers and help them discover how to live well with their illness.

For those of you who don’t know what a chronic illness is, count your blessings because you certainly are fortunate.  A chronic illness is anything that is treatable but for which there is no cure.  It’s just something you have to learn to live with, and you’ll be living with it for the rest of your life, most likely.  But you can live well, with grace and humor, despite what your body is telling you.  Cee and I want to help people on that journey so they don’t have to blaze their own trail or feel like no one understands them.

Cee has Lyme Disease, an illness which has brought her to the edge of death twice with multiple organ failure.  We are experts on the subject of living with chronic illness.  If Lyme Disease or any other chronic illness is a part of your life, jump on over and join Cee’s healing blog to hear about all the great things we are up to.  You’ll find a kindred spirit, inspiration, and hopefully a little relief.

Blessings!

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Comments
  1. Louise says:

    You both have stories that need to be told – and a combined story that is powerful. I’m so glad to hear you will be formalising your journey into a book to help people understand and navigate the confusion, grief, loneliness, gifts and blessings of living with a chronic illness. Please feel free to try out your chapters with us!! In the meantime, I think I’ll get a hold of JSelak’s book above. 🙂

  2. I absolutely adore that caretakers are being brought into the light. Thank you for sharing. I second or third an approval of this book. Wish I’d had 25 years ago. I especially think anyone knew to this life should read this. And of course anyone in their life.

  3. eof737 says:

    Thanks for sharing this! 🙂

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